Tug’s Take
Dementia (London)MAY 2026
Caregiving as Work: A Qualitative Study of Dementia Caregiving Among Mexican American Families Using SEIPS 3.0
On caregiving as a system, not a sentiment
Fifteen families is a small study. The frame is the interesting part.
SEIPS 3.0 is a human-factors framework built for hospitals, the tool you reach for when you want to know why a clinical workflow keeps failing. Pointing it at a kitchen table is a deliberate move. It treats family dementia care as work with a structure: tasks, tools, organizational supports, and the environment around them.
What it found in a U.S.-Mexico border community: care understood as a non-delegable family responsibility, stigma that discourages disclosure, language barriers that block access to organizations, and an uneven split inside the family. Those forces converge, most often, on daughters or wives.
The reframing matters more than the sample size. Burnout described as a personal failure is a private problem. Burnout described as a system with identifiable failure points is a problem you can design against.
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